2 Parkies in a Pod: a Parkinson's Podcast Dave Clark & Kuhan

Are you struggling to get yourself heard because your voice is quiet, mumbled or you just cant get the words out?

Are your meds getting stuck in your throat?

Do you dribble or have a dry mouth?

We may be able to help!

This week the boys catch up with Tim Grover, consultant speech therapist in the movement disorders department at University College London.

He tells us why people with Parkinson’s suffer speech problems, offer some tips on swallowing and explains the right time to seek specialist help.

More information can be found on the Parkinson's UK website:

Speech & Communication problems in Parkinson's

Eating, Swallowing & Saliva control in Parkinson's

We also reflect on the impact of our last episode about life expectancy with Parkinson’s.

And doing AMAZING things this week .. A Parkie swimming the channel, the Premier League referee going public about his diagnosis, and a Parkie taking part in the 2024 Olympics.

We hope you enjoy it…

This week we talk about the “The Elephant in the room“ - mortality rates amongst people with Parkinson’s. Our special guest is Professor Bas Bloem, one of the world’s leading Parkinson’s experts. Bas has written a paper on the subject of life expectancy with the condition.

In recognition of his outstanding work in the field of Parkinson’s, the professor has recently been knighted in his native Netherlands. He’s one of the most engaging and eloquent speakers in the Parkie world.

https://www.parkinsonnet.com/about-parkinsonnet/our-team/

Please don’t be scared to listen to this episode, we also talk about how to stay strong for long with the condition using exercise, diet and a positive mindset.

Also in 'People with Parkinson's Do Amazing Things' we feature Sean Stillman's BBC radio documentary 'Parkinson's and Me' where he reflects on his condition and his life since his diagnosis.

And Dave reflects on his day out at the Cure Parkinson's Cup

https://www.instagram.com/babbelbloem/

@basbloem (Bas Bloem)

@morethanatremor (Kuhan)

@DaveClarkTV

Joining Dave & Kuhan for a game of Fact or Fiction are Claire & Simon from Parkinson’s UK who help dispel some of the common myths about Parkinson’s.



Show links

Go to 2parkiesinapod.com or reach out to us on social media 

email us at hello@2parkiesinapod.com



Parkinson’s UK Helpline 0808 800 0303

Parkinson’s UK Research Network

Parkinson’s UK Become a Member

Parkinson’s UK Information Resources Catalogue

Parkinson’s UK World Parkinson’s Day

Economist Article

Association of British Neurologists Workforce Survey

Parkinson’s Diagnosis stats

Dept of Work & Pensions Benefits Data Portal

NHS Workforce Statistics

Free Gym Membership: 

https://www.everyoneactive.com/promotion/parkinsons/

purehelp@puregym.com

Where to send your Parky smells: https://www.medicaldetectiondogs.org.uk/neurological-diseases/

In this episode Kuhan gets his tremor wired for sound, taking part in a ground breaking research study at University College London. The team created 5 unique songs from the tremors of 5 unique people with Parkinson’s. The album ‘Tremors vs Tremors’ is available to listen to on Spotify, Apple Music & Amazon… there’s even a limited edition vinyl record. All royalities are being donated to Parkinson’s UK. We’re joined by the man behind the project Dr Christian Lambert and two of the other study participants, Clare and Stephanie.



Tremors vs Tremors

https://tremorsvstremors.com/

Listen on Spotify https://open.spotify.com/album/5Q514xQ7lfQPT2s6GpT5jm?si=z-OMxr9IRYaSzWoIVrdQHA

Listen on Apple https://music.apple.com/us/album/tremors-vs-tremors-ep/1733686264

Listen on Amazon https://music.amazon.de/albums/B0CWS4RWBV?marketplaceId=A1PA6795UKMFR9&musicTerritory=DE&ref=dm_sh_RoHkhmu4xjztd3igINdcA2XcY

UCL movement disorder https://www.ucl.ac.uk/ion/research/research-centres/movement-disorders-centre/research

Parkinsons UK Research https://www.parkinsons.org.uk/research/get-involved-research

Del Amitri Parkinson’s documentary https://www.bbc.co.uk/programmes/m001x49y

Kuhan’ Blog they made a song from my tremor https://medium.com/@kuhan4/they-made-a-song-from-my-tremor-fefe7011d863

In this episode, we explore grooming and self-care.

There’s an old saying..

No matter how you feel

Get up

Dress up

Show up

Never give up

Shafaq @Dr_SF_Hussain⁠ a dentist with Parkinson’s shares her tips on mouth and tooth care

Anne Marie Booth @annieconmonkey talks ditching killer heels, Dr Martyn’s, hair and nail care.

Joe Gregory @JoeGregory100 tells us about slip on brogues and picking up a fashion bargain.

Plus doing amazing this week…

Richard Dunning, The shakey photographer @Richardpud1977

The cardigan wearing guitar playing Andrew Wright from Nottingham… @apwright

@Peacefultaino  56 year old Puerto Rican man with Parkinson’s pulling off some killer dance moves..

Stylish reading glasses at reasonable prices …

https://www.izipizi.com/ww_en

Comfortable, stylish gym, leisure clothing (pricey, but lovely)

https://vuoriclothing.co.uk

Parkinson's UK Mouth and Dental issues

This week the boys talk to Parkinson’s activist and fellow Podcaster Larry Gifford. His podcast ‘When Iife gives you Parkinson’s’ is an open and honest insight into the condition - no subject is out of bounds. Larry is also the founder of PD Avengers, a global alliance of people effected by the condition. In a wide ranging discussion we also talk about our D-Day (diagnosis) experiences, Larry's DBS journey and the impact Parkinson's has on relationships.

People with Parkinson’s doing amazing things this week includes @Markxhogben - a man living off grid in the Canadian wilderness.