Champions for HD Podcast Shelby Lentz
-
- Business
-
Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
-
A Raw Conversation About Living Gene Positive - with Charlotte Conn
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.
Follow Champions/External links:
linktr.ee/championsforhd
Website
Follow Shelby:
https://www.shelbylentz.com/
linktr.ee/shelby_lentz
In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.
Support the show -
Testing, Finding Support, and Mental Health with HD - With Jenna Woodard
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.
In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information she received. She shares the challenges of living with a parent who has HD and the difficulties in convincing them to seek help. Lastly, she discusses the importance of sharing personal experiences and dealing with negativity. In this conversation, Shelby and Jenna discuss various topics related to living with Huntington's disease. They talk about dealing with insensitive comments and the importance of not engaging with negativity. They also share their experiences of being open about their condition and the support they have received from the HD community. The conversation touches on the challenges of starting a family when living with HD and the process of applying for in vitro fertilization. They also discuss mental health and coping strategies, emphasizing the importance of finding support and community.
Follow Champions/External links:
linktr.ee/championsforhd
Website
Follow Shelby:
https://www.shelbylentz.com/
linktr.ee/shelby_lentz
Support the show
Support the show -
The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at (wikman.p@northeastern.edu)
Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F...
Apple Podcast Link: https://podcasts.apple.com/us/podcast...
Follow Champions:
https://www.championsforhd.org/
https://www.instagram.com/championsfo...
https://www.facebook.com/championsforhd/
Follow Shelby:
https://www.instagram.com/shelby_lentz/
https://www.shelbylentz.com/
Support the show -
Losing a Spouse With Huntingon's Disease with Amy Abbott
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregiving. Amy is also our Champion for HD Caregiver for 2022. She was nominated and received the award last year.
I hope you enjoy our conversation!
Follow Champions:
https://www.championsforhd.org/
https://www.instagram.com/championsforhd/
https://www.facebook.com/championsforhd/
Subscribe to Kevin's YouTube Channel:
https://www.youtube.com/user/backonmyish
Follow Shelby:
https://www.instagram.com/shelby_lentz/
https://www.shelbylentz.com/
https://www.facebook.com/shelbylentzmusic/?ref=bookmarks
Support the show
Support the show
Support the show -
"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show.
I hope you enjoy our conversation!
Follow Champions:
https://www.championsforhd.org/
https://www.instagram.com/championsforhd/
https://www.facebook.com/championsforhd/
Subscribe to Kevin's YouTube Channel:
https://www.youtube.com/user/backonmyish
Follow Shelby:
https://www.instagram.com/shelby_lentz/
https://www.shelbylentz.com/
https://www.facebook.com/shelbylentzmusic/?ref=bookmarks
Support the show
Support the show -
Living Gene Positive in a Relationship - with Sarah and Brandon
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD.
I hope you enjoy our conversation!
Follow Champions:
https://www.championsforhd.org/
https://www.instagram.com/championsforhd/
https://www.facebook.com/championsforhd/
Follow Shelby:
https://www.instagram.com/shelby_lentz/
https://www.shelbylentz.com/
https://www.facebook.com/shelbylentzmusic/?ref=bookmarks
Support the show (https://www.championsforhd.org/donate)
Support the show
Support the show
Customer Reviews
Amazing!
Shelby is such an inspiration. This podcast is a must listen!
Excellent!
Wonderful podcast with an amazing mission!