6 episodes
The Cryptid Sloth Show Kenneth Raymond
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- Education
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5.0 • 10 Ratings
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Whether you or a loved one are newly diagnosed with Charcot Marie Tooth disease, or you are a seasoned CMT pro, The Cryptid Sloth Show is the podcast for you.
Charcot Marie Tooth disease, or CMT for short, is an inheritable peripheral nervous system disease. Also known by names such as Hereditary Motor and Sensory Neuropathy (HMSN), Hereditary Sensory and Autonomic Neuropathy (HSAN), distal Hereditary Motor and Sensory Neuropathy (dHMSN), and many others, CMT is the most common inheritable neuromuscular disease, yet nobody has ever heard of it, including many in the healthcare profession. If you, a family member, or a friend are diagnosed with CMT, chances are reliable information is hard for you to find, and chances are you have more questions than you have answers. The Cryptid Sloth Show is dedicated to bringing you those answers.
Show host, Kenneth Raymond, is a CMTer with CMT1A. Diagnosed in 2002, at 29 years old, he has made it his passion to learn and absorb as much about CMT as he can. Learning from the best and brightest CMT experts, and from the CMT patient community alike, Kenneth cuts through the complexities of CMT by engaging you in meaningful and thought-provoking discussion.
With each episode, The Cryptid Sloth Show translates the complexities of CMT into easily relatable narratives that Kenneth presents from the patient perspective on a wide range of topics that are important to CMTers. Show guests include everybody from world renowned CMT experts, to everyday CMTers, and everybody in between.
New episodes every Wednesday. Join in, subscribe, and bring a friend or two.
The Cryptid Sloth Show: Where CMT and Life Meet in Podcast
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Ep. 5: Road Trip Conclusion
This episode finishes the story of show host Kenneth Raymond’s personal road trip journey that led to his CMT diagnosis. This is the second installment of a two-part episode. The first episode, Road Trip 1, starts with the story of a 12-year-old climbing a giant oak tree in the dead-of-Winter, and then everything changes all of a sudden, without warning, and nothing would ever be the same for our show host, and this episode picks up right where the first one leaves off, and after a few twists and turns along the way, finishes with how our show host was diagnosed with his CMT.
You can download the episode transcript for free at: https://thecryptidsloth.com/podcast
The Cryptid Sloth Show: Where CMT and Life Meet -
Ep. 4: Road Trip Part 1
This episode tells the story of show host Kenneth Raymond’s personal road trip journey that led to his CMT diagnosis. This is the first installment of a two-part episode, and it starts with the story of a 12-year-old climbing a giant oak tree in the dead-of-Winter in suburban Detroit, and then everything changes all of a sudden, without warning, and nothing would ever be the same for our show host.
You can download the episode transcript for free at: https://thecryptidsloth.com/podcast
The Cryptid Sloth Show: Where CMT and Life Meet -
Ep. 3: Change Changing Places
Does CMT change types from one generation to the next? Can CMT change types? Can somebody inherit a different type of CMT than what their mom or dad has? The answers are easy, but getting to the why and how behind the answer requires a little bit of digging.
In this episode, we tackle the questions about CMT changing types through inheritance and explain the how and why behind some families having more than one type of CMT.
You can download the episode transcript for free at: https://thecryptidsloth.com/podcast
The Cryptid Sloth Show: Where CMT and Life Meet -
Ep. 2: What's in A Name?
With CMT being inheritable, there are four ways that CMT can be inherited. These four ways are called the inheritance patterns. The inheritance patterns are confusing. The genetic mutations that cause CMT are confusing. There are so many types, each confusingly caused by a different confusing gene mutation. CMT is as confusing as it gets. For all the confusing variability of CMT, there's only a couple of things that don't change—there’s always an exception to the rule and CMT is inherently confusing. Amid all this confusion, there is an easy-to-follow method for keeping track of all the confusion. Episode 2: What’s in A Name explains all of the nuances, explains how everything is organized, and breaks down the CMT naming history into an easy to follow narrative.
You can download the episode transcript for free at: https://thecryptidsloth.com/podcast
The Cryptid Sloth Show: Where CMT and Life Meet -
Ep. 1: It's All In The Genes...
In this inaugural episode, I dive into the deep end, head first, and fully explain each way Charcot Marie Tooth disease can be inherited, and in great detail. Then, I remove the veil of secrecy from the mysteries of the genetic tests for CMT by explaining what the terminology is in the test reports and how the terminology is used to aid the doctors in interpreting the results.
You can download the episode transcript for free at: https://thecryptidsloth.com/podcast
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The Cryptid Sloth Show Trailer
The official trailer for the Cryptid Sloth Show, the new podcast dedicated to the weirdest named neuromuscular disease nobody has ever heard of: CMT.
Charcot Marie Tooth disease, or CMT for short, is a rare inheritable neuromuscular disease, and it is the most common inherited neuromuscular disease. Affecting over 3 million people, almost nobody has ever heard of CMT. The Cryptid Sloth Show is dedicated to fixing that.
Host, Kenneth Raymond, was diagnosed with CMT in 2002. Since then, he has made it his passion to learn and absorb everything he can about CMT, and he is passionate about plugging up the information gap by sharing everything he has learned and continues to learn. This is a podcast by a CMTer for CMTers.
Head over to the website for show notes and you can download a copy of the episode transcript for free while you're there; www.thecryptidsloth.com/podcast
The Cryptid Sloth: Where CMT and Life Meet