100 episodes
BloodStream BloodStream Media
-
- Health & Fitness
-
-
5.0 • 38 Ratings
-
BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.
-
New NBDF CEO, Phil Gattone
We have newly appointed NBDF CEO, Phil Gattone with us sharing his background and his vision for the organization and community. And, we have the story of the first commercially dosed patient of hemophilia B gene therapy. Hear from Jamison Buxton, the father of the patient…who also happens to be the director of the HTC.
Show Notes:
Subscribe:
The BloodStream Podcast
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on Twitter
-
Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
Dr. Glenn Pierce is with us to share what to expect from the upcoming WFH Congress in Madrid, and Amy sits down with President and CCEO of the Plasma Protein Therapeutics Association (PPTA), Anita Brikman. FLOW co-host Jessica Richmond sits in for Patrick and we’ll finish up with an Elite Athletes segments will feature bleeding disorder community member, Ricardo Ramirez.
Show Notes:
Subscribe:
The BloodStream Podcast
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on Twitter -
Highlights from ASH with Dr. Akshat Jain
We’re back with Dr. Akshat Jain who shares highlights in bleeding disorder research from ASH 2023, plus the differences between hemophilia A vs hemophilia B gene therapies with Dr. Mark Redding. We close out with our latest Elite Athletes segments featuring bleeding disorder community legend, Perry Parker. Don’t miss it!
Show Notes:
Subscribe:
The BloodStream Podcast
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on Twitter
-
HFA CEO Dan Kelsey and Rare Disease Day tribute
HFA CEO Dan Kelsey joins Patrick and Amy to respond to recent organizational changes, followed by Blood Brother, Carl Weixler, who shares a bit about HFA’s history, mission, and current state. Also, a tribute to Rare Disease Day, led by voices from BloodStream Media.
Show Notes:
Subscribe:
The BloodStream Podcast
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
Check out the Everyday Life Foundation hosting Bombardier Blood
Everyday Life Foundation Legislative Asks
This Rare Disease Day segment is brought to you by Genentech. Genentech has several resources to help caregivers navigate hemophilia including stories from other members in the community. Please visit www.thecommunityhelps.com to learn more.
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on Twitter
-
NBDF welcomes new CEO; HFA responds
NBFD landed a new CEO, and HFA has responded to recent organizational changes; plus, we hear from Dr. Mark Reding and Dr. Steven Pipe about their excitement over gene therapy being added to the treatment landscape in hemophilia. We close with @theHemeNP, Maya Bloomberg talkin’ Rare Disease Day.
Show Notes:
Subscribe:
The BloodStream Podcast
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on Twitter
-
Preserving Tainted Blood History and Bath Bleeds
We’ve got a terrific interview with Kathy MacKay and Dana Kuhn about the efforts the Committee of Ten Thousand (COTT) is taking to preserve documents from the tainted blood tragedy. And another Elite Athletes segment featuring blood brother and cyclist, Giovanny Pernudi. Oh …and Patrick had a bath bleed.
Show Notes:
Subscribe:
The BloodStream Podcast
To learn more about the Committee of Ten Thousand and to get involved, visit www.COTT1.org
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on Twitter
Customer Reviews
fun show and I learned from it!
Subscribed and will share. Thank you !
Fantastic Host Driven Show!
Hemophilia? Fun? The hosts of this show make it so. This is my go to favorite podcast. Keep ‘em going!
The best blood pod in the land!!
Funny, smart, accurate and current! I refuse to miss an episode!